Calendar of Events
Project Compassion Events
Advocacy
in Action:
Creating
Strategies for the Modern Medical Maze
Friday,
March 7, 2008 from 9:00 a.m. to 4:00 p.m.
Carol Woods Assembly Hall
750 Weaver Dairy Road, Chapel Hill, NC
Featuring
Keynote Speaker Marsha Fretwell, MD
Navigating
the medical world is a challenge for anyone living with illness. Whether you are a patient, family member, friend or caring
professional, the modern medical maze can be difficult and disorienting.
The time has come for all of us to become better equipped advocates for
people living with illness.
“Advocacy
in Action: Creating
Strategies for the Modern Medical Maze” is a workshop designed to help you
gain key knowledge, skills and strategies to advocate more effectively for
yourself and others.
·
Dr. Marsha Fretwell, respected compassionate physician and powerful
speaker, will explore the key health care issues all of us need to know to
advocate effectively for ourselves and others.
·
Well-known attorney Beth Tillman will help us understand the legal
landscape and how it impacts health care advocacy.
·
A panel of patients, family members and friends who have learned patient
advocacy from the inside out will share their extraordinary experiences and help
us explore the world of effective health care advocacy.
·
A panel of caring professionals who have helped individuals and families
navigate the medical system will share their advocacy insights and strategies.
·
Dr. Marilyn Hartman, former Psychology professor at UNC and director of
Project Compassion’s caregiving research study, will help us explore the role
friends and neighbors can play in health care advocacy and quality of life,
including insights from Project Compassion’s new study of community caregiving
support.
·
All participants will work together in small groups to share their
experiences, sharpen their skills and develop their own advocacy action plans.
Whether
you are a person living with illness, a family member, friend or caring
professional, this symposium will help you better understand health care
advocacy from the inside out and gain a new set of skills and strategies to
advocate for yourself or for others.
Symposium
Schedule:
8:30 – 9:00
Registration, Continental Breakfast, Information Tables
9:00 – 9:15
Welcome and Introductions
9:15 –10:15
A Physician’s Perspective on
Effective Health Care
Advocacy
with Dr. Marsha Fretwell
10:15
– 10:30
Break
10:30
– 11:00 The
Legal Landscape: Need-to-Know Legal
Issues
that Impact Health Care Advocacy with
Beth
Tillman
11:00
– 12:15
Advocacy from the Inside Out:
Patients and
Families
Speak from Experience
12:15
– 1:00
Lunch Provided by Carol Woods
1:00 – 2:15
Health Care Professionals as
Advocates: Making a
Difference in
Systems and People’s Lives
2:15 – 2:30
Break
2:30 – 3:00
Advocacy in Community:
How Friends and Neighbors Can
Advocate Effectively
3:00 – 4:00
Finding Your Voice:
Taking Action as an Advocate
Registration
Registration includes the full day symposium (6
contact hours), continental breakfast, lunch, snacks, and materials.
The registration cost for this
symposium is $50.00 for Participants and $35.00 for Seniors and Students
who register by February 29, 2008.
After February 29, 2008 the cost will be $60.00 for Participants and
$45.00 for Seniors and Students.
Partial scholarships may be available.
Register
online by clicking here or by calling (919) 402-1844.
Sponsorship
Opportunities for Businesses, Organizations and Individuals
To cover the full cost of
this event, it is vital for us to secure sponsorships from businesses,
organizations and individuals to underwrite this event.
Please email james@project-compassion.org
or call (919) 402-1844 to inquire about business, organizational or individual
sponsorship benefits.
“Sick
Girl Speaks!” by Tiffany Christensen
Now Available!
 Sick Girl Speaks!
contains a lifetime of patient experiences, lessons and reflections. Tiffany
Christensen has lived with chronic, acute and terminal illness.
She has spent decades in the medical system making mistakes and
overcoming obstacles. The time has come, after her second transplant, to tell
patients and families what she knows.
With wit and clarity, this author brings us into the world of
a patient--imparting lessons that could only come from so many years of
experience. Sick Girl Speaks!
is an easy read with much to be gained for patients, families and professionals
alike.
“Tiffany
loads her book with practical tips and advice, personal anecdotes, and profound
wisdom. The reader will learn how to jump over the daily hurdles and wiggle
through the emotional hoops that she will encounter on her chronic illness
journey. Tiffany’s writing style and willingness to expose her most vulnerable
thoughts, makes the reader feel like she has sat down with a caring new friend
who will guide her through the medical maze, preventing many headaches and
conquering fears that no one else wants to talk about. I highly recommend it. It
will make a huge impact on how you will choose to live with your illness.”
--Lisa Copen, Author of Beyond Casseroles:
505 Ways to Encourage a Chronically Ill Friend
You
may purchase Sick Girl Speaks at www.sickgirlspeaks.com.
During January and February, 2008, a portion of the proceeds of all
paperbacks purchased will benefit Project Compassion!
“Celebrate
the Sweet Things in Life” at the Sick Girl Speaks! Boutique Book Bash
Sunday,
February 17, 2008 from 3:00 to 5:00 p.m.
Moshi Moshi Hair Salon at 416 West Franklin Street, Chapel Hill, NC
 Project Compassion is throwing a book launch
party for Tiffany Christensen’s new book Sick Girl Speaks! to celebrate
the sweet things in life!
Join
us on Sunday, February 17, 2008 from 3:00 to 5:00 p.m. at Moshi Moshi Hair Salon
at 416 West Franklin Street, Chapel Hill, NC
During
the party, you will have the opportunity to:
·
Meet the author, Tiffany Christensen, and hear her read
from Sick
Girl Speaks!
·
Purchase a copy of the book and have it autographed
·
Snack on yummy sweets and coffee drinks
·
Bid on carefully selected silent auction items that will
enhance
the sweetness of your life.
Here
is a taste of the Sweet Things auction items:
·
UNC
Basketball Tickets
·
Amazing
Beach Trips
·
Clyde
Jones "Angel" Statue
·
Beautiful
Hand Made Necklace by a Local Artist, Kathy Hartmann
·
Stunning
Prayer Flag Art by Pat Kosdan
·
A
Reflexology Session at CommonHealth in Carrboro
·
A
Divine Moshi Moshi Facial
·
And
more!
Space is limited!
Please RSVP as soon as possible and no later than February 10, 2008.
Let us know you are coming by emailing names, addresses and emails of
attendees to tiffany@project-compassion.org
or by calling (919) 402-1844.
Thank you to Tiffany Christensen, Moshi Moshi owner
Catlin Hettle, and all of our auction, food and coffee donors for making this
event possible!
For
anyone who cannot come to the Boutique Book Bash, Tiffany will be signing books
at Market Street Books in Southern Village on Tuesday, February 26 at 7:00 p.m.
with a portion of the proceeds going to Project Compassion.
A
Write Way to Wellness
with Author Ray McGinnis
Monday,
March 31, 2008 at 7:00 p.m. at United Church in Chapel Hill
1321 Martin Luther King, Jr. Blvd., Chapel Hill, North Carolina
 Ray McGinnis, author of Writing
the Sacred Psalm, will return to Chapel Hill to offer the workshop “A
Write Way to Wellness.” McGinnis
will cover a carefully chosen, well-crafted series of questions, story
invitations, techniques and evocations that will place your feet on a healing
path. You'll
discover ways that journaling can be a powerful ally for anyone on a healing
journey, whether adjusting to physical, emotional, mental or spiritual health
challenges and transitions. Discover
journal writing approaches for self-care, stress, managing grief and loss. Explore how qualities
such as love, forgiveness and compassion can accompany the healing process.
Pre-registration is requested.
There is no registration cost for this event.
A donation of $10 is suggested to cover the cost of the event.
Email sonia@project-compassion.org
or call (919) 402-1844 to sign up. This workshop is sponsored by United Church in Chapel Hill in partnership
with Project Compassion. The workshop
will take place at United Church in Chapel Hill, 1321 Martin Luther King, Jr.
Blvd., Chapel Hill, North Carolina
What
Will Happen To Me?
A
Workshop on End-of-Life Issues for Persons with Developmental Disabilities
Saturday,
April 12, 2008 from 9:00 a.m. to 1:00 p.m.
The Seymour Center, 2551 Homestead Road, Chapel Hill, NC
For many years, advocates have
sought equal access and equal rights for people with developmental disabilities.
As a result, consumers with developmental disabilities have the right and
increased opportunity to plan their own lives, choose their own support, and
live their lives with dignity and respect.
In
addition to the challenges that all people face at end of life, consumers with
developmental disabilities, their family members, guardians and the health care
system face a unique set of challenges:
·
Consumers
with developmental disabilities lack opportunities to learn more about choices
and options throughout the course of their lives, so that their wishes can be
respected.
·
Family
members and guardians who provide care and/or assist their family members in decision-making
look ahead to their own aging and end of life.
They want to ensure the best support will continue for their family
members with developmental disabilities when they are no longer able to provide
support.
·
Professionals
face
challenges in helping consumers and family members to explore their options,
talk together about choices and have wishes honored.
Consumers
with developmental disabilities, their family members, guardians and
professional providers need specialized resources and support to plan ahead for
end of life more effectively.
In the words of one consumer
following the death of her parents, people with developmental disabilities need
to know: “What Will Happen to
Me?”
Event Description and the Keynote Speaker
On April 12, 2008,
Project Compassion will offer a workshop for consumers with developmental
disabilities, their family and friends and professionals to explore these
important issues and offer tools and strategies for planning ahead.
The keynote speaker will be nationally respected author and leader
in the field Jeffrey Kauffman, LCSW. Kauffman has taught at Bryn Mawr College Graduate School of Social Work
and Social Research and at the Center for Social Work Education of
Widener University.
He has consulted with more than 25 mental retardation agencies in direct
grief support services for staff and clients, training, and program development.
Kauffman is the author
of Guidebook on Helping Persons with
Mental Retardation Mourn and is the editor
of 2 books: Awareness of Mortality and
Loss of the
Assumptive World. He is the author
of numerous articles on death and
dying.
Kauffman’s
work has been widely praised nationally. Kenneth
J. Doka, PhD, one of the best-known national leaders in the
field of grief and loss, offers strong support for Mr. Kauffman’s latest book:
"Jeffrey Kauffman has to be commended for meeting the needs of an underserved
and disenfranchised
population of grieving persons. The Guidebook
is both
theoretically sound and eminently practical, and a real gift
to the fields of
developmental disabilities and thanatology."
Known as an excellent speaker and
facilitator, we are fortunate to have Jeffrey Kauffman lead this workshop.
The
schedule for the workshop will be as follows:
9:00 – 9:30
Registration
9:30 – 10:30 Opening Keynote by Jeffrey
Kauffman:
We Need to Talk: Bridging the Communication Gaps among
Consumers, Family Members and Professionals When It Comes to End
of Life
10:30 – 10:45
Break
10:45 – 11:45
Attorney Panel
Can You Help Me: Understanding the Key Legal Issues
Facing Consumers and Family Members at
End of Life
11:45 – 12:00
Break
12:00 –
1:00 Closing Keynote by Jeffrey
Kauffman:
They’re Not Coming Back: How
Grief and Loss Affects Consumers,
Family Members and Professionals
The registration cost
for this workshop is $25.00 for Participants and $15.00 for Consumers,
Seniors and Students who register by March 31, 2008.
The registration cost after March 31, 2008 will be $35.00 for
Participants and $25.00 for Consumers, Seniors and Students.
Individuals my register online by clicking
here or by calling (919) 402-1844.
Support
Team Development Conference
Thursday,
April 17 and Friday, April 18, 9:00– 4:00
Carol Woods Retirement Community, Chapel Hill, NC
The
Support Team Development Conference is a two day interactive workshop designed to equip
volunteer and organizational staff with a complete set of skills to organize,
orient and support volunteer caregiving Support Teams.
Project Compassion offers this conference in partnership with the
national Support Team Network.
Participants across the country have used this model successfully to
multiply caregiving support.
The first day offers
an overview of successful Support Team development. The focus is on
understanding the team approach and learning how to organize and orient Support
Teams in various settings.
The second day focuses on how to connect teams with the persons they will
serve and how to grow and sustain teams over time.
The
cost is $100 for people who register by April 1 and $125 for registration after
April 1, 2008. The registration cost includes 16 hours of training,
all materials, continental breakfast, and lunch both days.
For online registration, click
here. You may also email sonia@project-compassion.org
or call (919) 402-1844.
Moving
with Grief:
Physical Storytelling with
Sarah Campbell Arnett
Moving with Grief will offer participants another path for
expressing grief: saying goodbye,
letting go, remembering, and honoring loved ones. In this workshop, Sarah Campbell Arnett will blend principles
of Dance/Movement Therapy, Improvisation, Playback Theater, and Authentic
Movement to discover new ways to use movement to create a legacy and transform
relationships.
After reviewing the principles, structures, and applications
of Physical Storytelling, participants will experience telling, witnessing, and
retelling a story through movement. The reflected and shared stories within a group context
allows for transformation and healing as each teller can reveal, be seen, be
valued in their remembrances of a loved one near or after the end of life.
Sarah Arnett presented a version of this workshop in
September at the American Dance Therapy Association’s national conference in
New York. She is experienced in
working with professionals and community participants to facilitate this
movement with grief experience.
Pre-registration is required and space is limited.
The cost of this remarkable event is $20 for participants; $15 for
seniors and students. Register
online at www.merchantamerica.com/projectcompassion
or by calling (919) 402-1844.
This event is sponsored by Project Compassion, Duke
Community Bereavement Services, Duke University Hospital Bereavement Services,
and UNC Hospitals Bereavement.
Embracing
Life, Death, and Beyond
with
Jane Hughes Gignoux
 Friday, November 2, 2007, 9:00 am – 4:00
pm, to be held at Eno
River Unitarian Universalist Fellowship in Durham, NC
This
workshop will help professionals explore multicultural approaches to death and
grief and offer new tools and strategies for working with individuals and
families.
The
objectives for this workshop are to:
·
Explore personal and societal barriers and fears
surrounding death and dying
·
Discuss and develop an appreciation of different
cultural traditions and beliefs about death and dying
·
Discuss creative strategies and tool for professional
caregivers to use with patients and families at the end of life.
Jane
Hughes Gignoux, author of Some Folk Say: Stories of Life, Death and Beyond
will use stories and folktales from diverse cultures, discussion, creative
exercises, and reflective journaling, to help participants “open their
imaginal realms, explore hidden questions, and leave with new insights and tools
to use in their practice.” To
learn more about Gignoux, go to
http://www.lifedeathbeyond.com/somefolksay.htm
This workshop for caregiving professionals such as
health care professionals, social workers, therapists, counselors, clergy and
other helping professionals includes the workshop, 0.54 CEU’s and lunch. Registration is $65 per person by October 15; $80 per person after October 15. Add
$25.00 to registration cost for a hardback copy of Some Folk Say.
Click
here to register online or email sonia@project-compassion.org
for a registration form.
This workshop is sponsored by Project
Compassion, UNC Hospitals, Duke Hospital Bereavement Services, Duke HomeCare
& Hospice, and DUHS Education Services.
A
Community Pet Memorial Service:
Honor the Loss, Celebrate the Bond
 Sunday,
November 4th, 2007 at the Century Center, Carrboro. Doors Open for Honoring through Art 3:30 - 4:00 p.m. Memorial
Service 4:00 - 5:00 p.m.
Whether
you have experienced the loss of a pet recently or in the past, chances are you
were not given the opportunity to honor your pet's death and celebrate your bond
through a memorial service. Project Compassion understands the joy pets add to
our lives and the impact their deaths can have. For this reason, we want to
bring the community together for a time of art, celebration, reflection and
healing. Participants are
encouraged to bring photographs of beloved pets. Tiffany Christensen, Jan Clark,
Bev Dyer and James Brooks will lead this event.
This event is free and open to the public. Please reserve your space for
this free event by emailing handandpaw@gmail.com
or by calling (919) 402-1844. For
more about Project Compassion, go to www.project-compassion.org.
Support
Team Development Conference
Thursday, September 20 and Friday, September 21
from
9:00 am – 4:00 pm each day
Carolina Meadows, 100 Carolina Meadows
Chapel Hill, NC
Support
Team Development Conference is an interactive workshop designed to equip
volunteer and organizational staff with a complete set of skills to organize,
orient and support volunteer caregiving Support Teams.
The team approach can be applied effectively in a range of settings,
including faith
communities, service organizations, hospices, hospitals, retirement communities,
workplaces, schools, and neighborhood groups.
This conference will help you multiply
caregiving support in your community!
The cost is $100 for people who register by September
1 and $125 for registration after September 1.
Registration includes 16 hours of training, all materials, continental
breakfast, and lunch both days. Some
Durham County scholarships are available. To register online click here or
contact Sonia Norris at sonia@project-compassion.org
or (919) 402-1844 to register by mail or phone.
Support
Team Guidebook
More
than 50 million Americans offer care and support for a chronically ill, aged or
disabled loved one. Since 1994, the Support Team Network (www.supportteam.org)
has responded to this growing healthcare crisis by training and organizing
volunteers to give practical and emotional support to people living with
illness. This Guidebook provides a how-to plan for training and organizing
volunteers into Support Teams, a proven method of equipping and sustaining
volunteers for intentional, ongoing caring for persons with health care
concerns. You may be part of an organization seeking a workable way to care for
persons who are sick and elderly within your community. You may be a
professional related to a particular area of healthcare and you want to enable
volunteers to assist in caring for homebound patients. Whatever your interest,
the Support Team Network offers this Guidebook for your use.
Print version: $14.99; Download version: $14.99.
Order at http://www.lulu.com/content/753822
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