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Links
National
Resources
And
Thou Shalt Honor
PBS documentary companion web site
[Extensive resource listing for caregivers and caregiving professionals]
http://www.thoushalthonor.com/res/
AARP
601 E Street NW
Washington, DC 20049
(800) 4224-3410
www.aarp.org
Abledata
8630 Fenton Street,
Suite 930
Silver Spring, MD 20910
(800) 227-0216
www.abledata.com
Alzheimer’s
Association
919 North Michigan
Avenue, Suite 1100
Chicago, IL 60611-1676
(800) 272-3900 or (312) 335-8700
www.alz.org
Alzheimer’s Disease
Education and Referral Center
PO Box 8250
Silver Spring,, MD 20907-8250
(800) 438-4380
www.alzheimers.org
American Association of Homes and Services
for the Aging
2519 Connecticut Avenue NW
Washington, DC 20008-1520
(202) 783-2242
www.aahsa.org
American
Cancer Society
National Office
1599 Clifton Road Northeast
Atlanta, GA 30329-4251
(800) 227-2345
http://www.cancer.org
The American Foundation for AIDS Research
120 Wall Street, 13th Floor
New York, NY 10005-3902
(2112) 806-1600
www.amfar.org
American Heart
Foundation
National Center
7272 Greenville Avenue
Dallas, TX 75231
(800) 242-8721
www.americanheart.org
American
Stroke Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
(888) 478-7653
www.strokeassociation.org
ARCH National Respite
Network and Resource Center
Chapel Hill Training-Outreach Project
800 Eastowne drive, Suite 105
Chapel Hill, NC 27514
(888) 671-2594 or (919) 490-5577
www.chtop.com
Assisted Living
Federation of America
11200 Waples Mill Road, Suite 150
Fairfax, VA 22030
(703) 691-8100
www.alfa.org
Caring Connections
National Hospice and Palliative Care Organization
1700 Diagonal Road, Suite 625
Alexandria, Virginia 22314
Toll-free HelpLine: 800/658.8898
www.caringinfo.org
The
Care Team Network
Community Care Building
908 S. 20th Street
Birmingham, AL 35294-2050
(205) 975-9129
Toll-Free: 877-614-9129
www.careteam.org.
Children
of Aging Parents
1609 Woodburne Road, Suite 302A
Levittown, PA 19057
(800) 227-7294 or (215) 945-6900
www.caps4caregivers.org
Consumer Consortium on
Assisted Living
2342 Oak Street
Falls Church, VA 22046
(703) 533-8121
www.ccal.org
Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
(8800) 445-8106
www.caregiver.org
Friends’ Health
Connection
PO Box 114
New Brunswick, NJ 08903
www.48friend.org
Meals on Wheels
Association of America
1414 Prince Street, Suite 302
Alexandria, VA 22314
(703) 548 5558
www.mowaa.org
National
Adult Day Services Association
409 Montgomery Lane, Suite 642
Bethesda, MD 20814
www.caregiving.org
National Association of
Area Agencies on Aging
927 15th Street NW, 6th floor
Washington, DC 20005
(202) 296-8130
www.n4a.org
National Association of
the Deaf
814 Thayer Avenue
Silver Spring, MD 20910-4500
(301) 587-1788
TTY: (301) 587-1789
www.nad.org
National
Center for Vision and Aging
111 East 59th Street
New York, NY 10022-1202
(800) 334-5497
www.lighthouse.org
National Center on Elder
Abuse
12251 I Street NW, Suite 725
Washington, DC 20005
(202) 898-2586
www.elderabuse.org
National Family Caregivers
Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
(800) 896-3650 or (301) 942-6430
www.nfcacares.org
National Hospice and
Palliative Care Organization
1700 Diagonal Road
Arlington, VA 22314
(703) 837-1500 or (800) 658-8898
www.nhpco.org
National
Pressure Ulcer Advisory Panel (NPUAP)
SUNY at Buffalo, Beck Hall
3435 Main Street
Buffalo, NY 14214
(703) 464-4849
www.npuap.org
Parkinson’s Disease
Foundation
William Black Medical Building
Columbia –Presbyterian Medical Center
710 West 168th Street
New York, NY 10032-9982
(800) 457-6676 or (212) 973-4700
www.pdf.org
Social Security
Administration
Office of Public Inquiries
6401 Security Boulevard
Room 4-C-5 Annex
Baltimore, MD 21235-6401
(800) 772-1213
www.ssa.gov
Additional
Websites
The
American Institute of Cancer Research
http://www.aicr.org
The
Cancer Guide
Cancer Links
http://www.cancerlinks.org
Cancer
Supportive Care
http://www.cancersupportivecare.com
Celebrate Life
http://www.celebratelife.net
Consumer
Health and Human Services US Government: International
Cancer Information Center at the National Cancer Institute
http://cancernet.nci.nih.gov
Cremation Association of North America
http://www.cremationassociation.org
Medscape:
Summary of new articles.
http://www.medscape.com
The
National Childhood Cancer Foundation
http://www.nccf.org
On Our Own Terms: Moyers on Dying in America
http://www.pbs.org/wnet/onourownterms/about/
Oncolink:
General information on all types of cancer
http://oncolink.upenn.edu
Project Death in America
http://www.soros.org/death/
The
Society of Gynecological Oncologists: Physician locator.
http://www.sgo.org
Local
Resources
A
Helping Hand
PO Box 3234
Chapel Hill, NC 27515
(919) 969-7111
[A non-profit organization providing support services to senior citizens and
people with disabilities in Orange and Durham Counties]
Area
Agency on Aging (Triangle J Council of Governments)4222 Emperor Blvd., Ste. 200
Durham, NC 27701
(919) 558-9398
http://www.tjaaa.org
[Assists public and private organizations provide a comprehensive system of care for older adults that meet their needs
in a responsible, dignified manner. Area
served: Chatham, Durham, and Johnston. Lee, Moore, Orange, and
Wake counties.]
The
Carolinas Center for Hospice and End-of-Life Care
PO Box 4449
Cary, NC 27519-4449
(919) 677-4100
(800) 662-8859
www.carolinasendoflifecare.org
[Provides listing of national and state end of life resources and educational
programs.]
Chapel
Hill Senior Center
400 S Elliot Road
Chapel Hill, NC 27516
(919) 968-2070
[Provides
information, programs, and activities for local senior citizens]
Chatham County Council on
Aging
365 Hwy. 87 N.
Pittsboro, NC 27312
(919) 542-4512
http://www.chathamcouncilonaging.org/
[Provides information, services, and activities for Senior Citizens of Chatham
County]
Cornucopia House
Cancer Support Center
111 Cloister Court, Suite 220
Chapel Hill NC 27514
(919) 401-9333
www.cornucopiahouse.org
[Center providing a nurturing environment where patients, families and others
can gather to share and receive support, resources, and education to cope with
cancer]
Council
for Senior Citizens
807 S Duke Street
Durham, NC 27701-3975
(919) 688-8247
www.councilseniorcitizens.org
[Provides information, services, and activities for Senior Citizens of Durham
County]
Duke
Health Community Care, Hospice Services
Duke University Hospital
Erwin Road
Durham, NC 27710
(919) 620-3853
(888) 275-3853
www.dukehealth.org/dhcc/hospice_services.asp
[Provides comprehensive services for patients with limited life expectancy
and their caregivers in the home, in-patient facility or in a long-term care
facility]
Duke Family Support
Program
3600 DUMC
Durham, NC 27710
(919) 660-7510
Toll-free In NC only 800-672-421
www.adrc.mc.duke.edu
[Provides free newsletter, confidential telephone consultation
and
information on caregiving topics and educational programs]
Elder
Care Program of Orange County
PO Box 8181
Hillsborough, NC 27278
(919) 968-2087
http://www.co.orange.nc.us/aging/
[Provides information and services to older adults of Orange County and their
caregivers]
Family Support Network of
North Carolina
CB #7340
University of North Carolina at Chapel Hill
Chapel Hill, North Carolina 27599-7340
(919) 966-2841 or (800) 852-0042
www.fsnnc.org
[Provides support and information to families of children with or at risk for
special needs and to the professionals who work with them across the state]
Full Circle of Care
Part of the North Carolina Family Caregiver Support Program
www.fullcirclecare.org
[Extensive website listing education, information and assistance resources to
support family members caring for their older family members]
Funeral Consumers Alliance
of the Triangle
http://www.rtpnet.org/endolife/index.htm
[The Funeral Consumers Alliance of the Triangle provides information and
education about end of life arrangements: including advance directives, funeral
or memorial services, burial or cremation of the body, organ and/or tissue
donation or bequeathal of bodies for scientific use.]
Project
Compassion
180 Providence Road
Suite 1-C
Chapel Hill, NC 27514
(919) 402-1844
www.project-compassion.org
[Provides education, advocacy and support for people as they deal with serious
illness, death and grief as a natural part of life]
Triangle United Way
PO Box 110387
Research Triangle Park, NC 27709
(919) 460-3687
www.unitedwaytriangle.org
[Provides information on services available in Durham, Orange and Wake
counties]
UNC
Hospice
480 Hillsboro St., Suite 800
PO Box 1077
Pittsboro, NC 27312
(919) 542-5545
www.unchealthcare.org/our_services/
[Provides comprehensive services for patients with limited life expectancy
and their caregivers in the home, in-patient facility or in a long-term care
facility]
United Way 2-1-1
Phone number: 211
www.irissoft.com/tuw1
[Sponsored by Triangle United Way, 2-1-1 is a confidential
telephone service providing callers with an array of health and human service
information on agencies and programs available in Chatham, Durham, Orange, and
Wake counties. The 211 information
is also available online.]
Caregiving
www.agelessdesign.com
[Provides information and advice on home modifications and resources,
especially for people with Alzheimer’s disease
www.benefitscheckup.org
[Provides assessment of one’s eligibility for benefits]
www.bestcaregiverinfo.com
[Provides access to businesses, government agencies, and not-for-profit
organizations responsible for providing caregiving services]
www.caregivers.com
[Provides information on medical, legal, financial, and other caregiving-related
issues]
www.caregiversmarketplace.com
[Provides an array of resources-including product rebates and
discounts-specially for family caregivers]
www.caregiving.com
[Electronic version of a newsletter for people who provide care for
aging loved ones.]
www.eldercare.gov
[Provides a list of a variety of community support services for the elderly]
www.elderweb.com
[Extensive resource for information on eldercare as well as legal, financial,
and public policies concerning the elderly. Provides a state-by-state link to
long-term care, as well as a library of articles, reports, news, and events.]
www.familycareamerica.com
[Provides lists of caregiving resources in one’s community, including
residential care facilities, adult day care services, and hospice care.
Also, provides solution sharing and discussion forums.]
www.healthfinder.gov
[Search engine to
locate information on various health issues]
www.mayoclinic.com
[Extensive online library of health information]
www.mentalhelp.net/selfhelp
[Designed to be a starting point for exploring support groups and networks in
one’s community]
Advance Care Planning
Gundersen Lutheran
http://www.gundluth.org/eolprograms
The Living Will-A Guide for North
Carolinians -- Planning Your Estate
http://www.ces.ncsu.edu/depts/fcs/frm/docs/fcs364.html
Grief
and Loss
Celebrate
Life
http://www.celebratelife.net
Cremation
Association of North America
http://www.cremationassociation.org
Jane Us
http://www.memorialart.com
Solace
House
http://www.solacehouse.org/
Triangle Young Widowed
Friends (919)
423-7782
www.triangleywf.org
[Community of young widows and widowers in the Triangle area who gather together
to offer each other hope, friendship, and support to help rebuild lives in the
wake of losses]
Supports Groups
After the Death of a Child
Groups Located in the North Carolina Triangle Area
Survivors Of Suicide
Hospice of Wake County
1300 St. Mary's Street
Raleigh, NC 27605
919-828-0890
Contact: Shelley Colvin/Larry Bernstein
Meetings: Every Thursday at 6:30pm EST
Reflections
Hospice of Wake County
1300 St. Mary Street.
4th floor
Raleigh, NC 27605
919.828.0890
Contact: Toni James-Manus
Triangle Hospice
1804 Martin Luther King Jr. Parkway
Durham, NC 27707
919.490.8480
http://www.trianglehospice.org
Kinder-Mourn
1320 Harding Place
Charolette, NC 28204
704.376.2508
http://www.kinder-mourn.com
Other Support Groups
The Compassionate Friends
http://www.compassionatefriends.org
The Wake County Chapter of the Compassion
Friends
http://www.ncneighbors.com/108
Alive Alone
http://www.alivealone.org/
Bereaved Parents USA
http://www.bereavedparentsusa.org/header_defaultmasterborder.html
In Loving Memory
http://www.inlovingmemoryonline.org
SIDS Network
http://www.sids-network.org
Sudden Infant Death Syndrome Alliance
http://www.sidsallance.org/index/default.asp
Parents of Murdered Children, INC
http://www.pomc.com
National SHARE Office
http://www.nationalshareoffice.com
Pen Parents
http://www.penparents.org
Crisis, Grief and Healing
http://www.webhealing.com
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